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FAMILY SUPPORT INITIATIVE FOR CHILDREN AND YOUTH WITH SPECIAL NEEDS
The needs and challenges of children and families with special health
care needs are various and diverse. While some needs are specific to a
disease condition (e.g. sickle cell or PKU) or developmental disability,
many needs are shared amongst families of children and youth with
special health care needs (CYSHCN). These shared needs include:
One-stop access to information and referrals for ancillary services
Social support and family support
Caregiver training and respite services
Education, access to information and referral services
Advocacy
